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Designing a Patient-Centered User Interface for Access Decisions about EHR Data: Implications from Patient Interviews

Caine, Kelly ; Kohn, Spencer ; Lawrence, Carrie ; Hanania, Rima ; Meslin, Eric ; Tierney, William

Journal of General Internal Medicine, 2015, Vol.30(Supplement 1), pp.7-16 [Tạp chí có phản biện]

ISSN: 0884-8734 ; E-ISSN: 1525-1497 ; DOI: 10.1007/s11606-014-3049-9

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  • Nhan đề:
    Designing a Patient-Centered User Interface for Access Decisions about EHR Data: Implications from Patient Interviews
  • Tác giả: Caine, Kelly ; Kohn, Spencer ; Lawrence, Carrie ; Hanania, Rima ; Meslin, Eric ; Tierney, William
  • Chủ đề: privacy ; fair information practice ; electronic health records ; patient preferences ; human factors
  • Là 1 phần của: Journal of General Internal Medicine, 2015, Vol.30(Supplement 1), pp.7-16
  • Mô tả: Byline: Kelly Caine (1,2,3), Spencer Kohn (1), Carrie Lawrence (2,4), Rima Hanania (2,5), Eric M. Meslin (2,6), William M. Tierney (3,7) Keywords: privacy; fair information practice; electronic health records; patient preferences; human factors Abstract: BACKGROUND Electronic health records change the landscape of patient data sharing and privacy by increasing the amount of information collected and stored and the number of potential recipients. Patients desire granular control over who receives what information in their electronic health record (EHR), but there are no current patient interfaces that allow them to record their preferences for EHR access. OBJECTIVE Our aim was to derive the user needs of patients regarding the design of a user interface that records patients' individual choices about who can access data in their EHRs. DESIGN We used semi-structured interviews. SETTING The study was conducted in Central Indiana. PARTICIPANTS Thirty patients with data stored in an EHR, the majority of whom (70 %) had highly sensitive health EHR data, were included in the study. APPROACH We conducted a thematic and quantitative analysis of transcribed interview data. KEY RESULTS Patients rarely knew what data were in their EHRs, but would have liked to know. They also wanted to be able to control who could access what information in their EHR and wanted to be notified when their data we re accessed. CONCLUSIONS We derived six implications for the design of a patient-centered tool to allow individual choice in the disclosure of EHR: easy patient access to their EHRs an overview of current EHR sharing permissions granular, hierarchical control over EHR access EHR access controls based on dates contextual privacy controls and notification when their EHRs are accessed. Author Affiliation: (1) Clemson University School of Computing, McAdams Hall, Clemson, SC, 29634, USA (2) Center for Law, Ethics and Applied Research in Health Information, Bloomington, IN, USA (3) Indiana University, Bloomington, IN, USA (4) Indiana State University, Indianapolis, IN, USA (5) Department of Psychological and Brain Sciences, Indiana University, Bloomington, IN, USA (6) Center for Bioethics, Indiana University, Indianapolis, IN, USA (7) Regenstrief Institute, Inc, Indianapolis, IN, USA Article History: Registration Date: 18/09/2014 Online Date: 06/12/2014 Article note: Electronic supplementary material The online version of this article (doi: 10.1007/s11606-014-3049-9) contains supplementary material, which is available to authorized users.
  • Ngôn ngữ: English
  • Số nhận dạng: ISSN: 0884-8734 ; E-ISSN: 1525-1497 ; DOI: 10.1007/s11606-014-3049-9

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