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Our Year With the Glass: Expectations, Letdowns and Ethical Dilemmas of Technology Trials With Vulnerable People

Vines, John ; Mcnaney, Róisín ; Holden, Amey ; Poliakov, Ivan ; Wright, Peter ; Olivier, Patrick

Interacting with Computers, 2017, Vol. 29(1), pp.27-44 [Tạp chí có phản biện]

ISSN: 0953-5438 ; E-ISSN: 1873-7951 ; DOI: 10.1093/iwc/iww017

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  • Nhan đề:
    Our Year With the Glass: Expectations, Letdowns and Ethical Dilemmas of Technology Trials With Vulnerable People
  • Tác giả: Vines, John ; Mcnaney, Róisín ; Holden, Amey ; Poliakov, Ivan ; Wright, Peter ; Olivier, Patrick
  • Chủ đề: Health Care ; Assistive Technologies ; User Studies ; User Experience Design ; Ethics ; Parkinson'S
  • Là 1 phần của: Interacting with Computers, 2017, Vol. 29(1), pp.27-44
  • Mô tả: In this paper, we reflect upon the ethical dilemmas faced during our research exploring the potential of Google Glass as a self-care technology for people with Parkinson's. Our project involved two stages of research: an initial study that explored the overall acceptability and responses of people with Parkinson's to the technology; and a follow-up study that examined participants’ experiences of the technology in more depth through further trials and a series of co-design activities. While our first trials were successful, leading to publication and subsequent local and national publicity, our follow-up trials were hampered by technical problems that were often out of our control. We highlight how participants’ heightened expectations prior to the second trial, as a result of public discourse around the project, were difficult to meet. This led to our participants articulating their frustrations, feelings of lowered self-confidence, and in some cases a reduced sense of self-worth. We reflect on how the decisions and actions taken during the project led to these dilemmas, and how these relate to contemporary challenges in human-computer interaction research where there is increased focus on in the wild studies of technology use and a pressure to publicly disseminate the findings of research. In doing so, we offer an open and honest account of how a set of ethical dilemmas emerged while conducting technology field trials with a potentially vulnerable group, and offer guidance to future researchers finding themselves in similar circumstances.
  • Số nhận dạng: ISSN: 0953-5438 ; E-ISSN: 1873-7951 ; DOI: 10.1093/iwc/iww017

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